Thursday, June 7, 2012

ENT visit

I am not a doctor, and so some of the information I write here may be inaccurate as I am just trying to remember and explain what the ENT told me today at Scarlett's appointment.

The hearing test started out awful.  Scarlett did not like having something put in her ears.  To say she was distraught would not be accurate enough.  She didn't mind the hearing booth test where she would hear sounds and look towards them and be rewarded by seeing a dancing toy.  I felt so helpless in that hearing booth with her as I could hear sounds that she wasn't even aware were being made.  According to the doctor there were even softer sounds that babies should be able to hear that I wouldn't have noticed.

Her ENT explained that she has a 30-40% hearing loss or disturbance (not permanent).  The good news is her inner ear is not disturbed at all so there is nothing bothering the nerve.  To her sounds are all muffled and sounds like she is under water.  It's absolutely amazing how at 17 months she has such a grasp of the oral language- but makes sense why several words are mispronounced....it's not just that she's a baby, she just can't hear me saying them.  The test also explained why Scarlett is a late walker - she is still minimally walking on her own and is not steady.  Her balance is affected by this fluid blockage.  The doctor showed us photos of a normal ear and of Scarlett's ear - her ear drum is protruding - it's being pushed out by the fluid.

And now I feel even more helpless b/c her appointment for tubes is not until August 3rd.  Knowing what I know about her hearing and balance it makes me upset that she needs to wait two more months to fix this.

My symptoms today - well, my breasts aren't sore like they were two years ago, but I really have no breasts to speak of anymore...to say I resemble a ten year old boy would be close to accurate - thank goodness for padded push up bras for illusion :)

I woke up this morning with sharp pain in my sides - similar to how I felt when pregnant with the stretching pains....I know there is nothing stretching.  I also felt nauseas this morning, but I ate quite late so that could be from that too.  It's funny how my beliefs and moods change during the wait.  Last night I was absolutely CONVINCED that it worked, which is ridiculous b/c it is way too soon to tell.  Today I feel very unsure.  Plus, I did a lot of holding and carrying Scarlett at the doctor and this morning b/c she woke up with a fever.  If there are any new signs I will report them later.  Today I am 3 weeks PUPO.

I really could use a nap, but report cards really need to be worked on.  I am trying to build my comment library.  So far I have created one comment - well, 4, one for each potential level, but only for one subject area...I have MANY to go.

4 comments:

  1. Sucks that Scarlett has to wait so long but at least you now know.

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  2. Very interesting about the ENT. I can only imagine what a difference having the tubes will make for Scarlett...still keeping my fingers crosed your embie sticks

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  3. Oh, no! Poor Scarlett--I can't believe she has to wait so long for the ear tubes. But on the positive side, thank goodness you found out now and not when she was 3 or 4. I bet she'll start reaching milestones very quickly once the tubes are in place. (Can you imagine a time--not too long ago--when this medical technology wasn't available? At least now we know how to "fix" these things!)

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  4. Try not to worry too much - Scarlett will catch up on the stuff she is missing due to fluid. And it's awesome that you've given her so much sign language to use - keeps those language neurons firing away! I'm sorry to hear she has to wait so long - is there any chance she can get in earlier with a cancellation?

    Carys has another sound booth test tomorrow. I know what you mean with the sad feeling of hearing something and them being oblivious. Glad you got your answers, though.

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